Goal 4: Empower Individuals with Health IT to Improve their Health and the Health Care System
The Vision:
The government wants to arm people with knowledge thereby give them greater control over their own health care. Health IT is a critical tool in both empowering individuals and shifting care to be more patient centered. With the right tools, individuals can become more attuned to healthy behaviors, monitor their health, make informed personal health decisions, and receive preventative care. Patients managing illnesses or other ailments can keep better track of their health care, receive health care solutions remotely, and participate in their care coordination.
The single biggest lever to individual empowerment is access to data. Data liquidity will make health IT meaningful for individuals, promote technological innovation, move care to center more on the individual, and ultimately have a direct effect on population health. Engaging individuals with health data is a top priority of the Medicare and Medicaid EHR Incentive Programs.
Main Purpose (Objectives):
- Engage individuals with health IT
- Accelerate individual and caregiver access to their electronic health information in a format they can use and reuse
- Integrate patient-generated health information and consumer health IT with clinical applications to support patient-centered care
What to Expect:
Engage individuals with health IT
- Listen to individuals and implement health IT policies and programs to meet their interest
- The HIT Policy Committee (HITPC) and the HIT Standards Committee (HITSC) – and several sub-committees, or workgroups make recommendations to the National Coordinator on crucial policy and program decisions on an ongoing basis. While individuals and consumer advocates have been represented on some of the Committees already, the federal government will strengthen that representation
going forward. - Communicate with individuals openly and spread messages through existing communication networks and dialogues. Education and outreach efforts will be aimed at helping people understand the transition to EHRs, the value of health IT and how health IT can be leveraged to make informed choices related to their physical and behavioral health and care.
- The HIT Policy Committee (HITPC) and the HIT Standards Committee (HITSC) – and several sub-committees, or workgroups make recommendations to the National Coordinator on crucial policy and program decisions on an ongoing basis. While individuals and consumer advocates have been represented on some of the Committees already, the federal government will strengthen that representation
Accelerate individual and caregiver access to their electronic health information in a format they can use and reuse
- Through Medicare and Medicaid EHR Incentive Programs, encourage providers to give patients access to their health information in an electronic format.
- Through federal agencies that deliver or pay for health care, act as a model for sharing information with individuals and make available tools to do so.
- Establish public policies that foster individual and caregiver access to their health information while protecting privacy and security HHS will support approaches that:
- Feature a transparent, understandable, and easy to use online process that enables consumers to download and reuse their data
- Accommodate the range of user capabilities, languages and access considerations, including effective strategies for ensuring accessibility and usability of electronic health information for people with disabilities and meaningful access to such information for individuals with limited English proficiency.
- Provide strong privacy and security protections
Integrate patient-generated health information and consumer health IT with clinical applications to support patient-centered care
- Support the development of standards and tools that make EHR technology capable of interacting with consumer health IT and build these requirements for the use of standards and tools into EHR certification.
- Solicit and integrate patient-generated health information into EHRs and quality measurements.
- “Patient-generated insights” are individual’s observations and perceptions about their own health or care. These could come in the form of surveys, health journal entries, online blog entries, or any number of other media.
- “Device-generated data” is data captured by consumer health IT. Such patient-generated health information can be valuable to providers in adjusting treatment regimens, valuable to individuals in understanding and improving on their health choices, and valuable to the health system in measuring and rewarding for health care quality.
- Encourage the use of consumer health IT to move toward patient-centered care.
Consumers have expressed interest in the use of health IT tools to make sure their information is correct, look at test results, email providers, schedule appointments online, and refill prescriptions online, all of which lend themselves to more patient-centered care. For care to truly become more patient-centered, providers will need to adopt new processes and uses of health IT that empower individuals in understanding and directing their care.








